Fibromyalgia

Article: 3 Reasons Why An Invisible Illness Is More Dangerous

Invisible illnesses can indeed be more dangerous than visible ones. This recent article posted on the Huff Post, articulates how an increased risk of suicide, judgement and prejudice from others and finally, a lack of research funding, puts those of us with invisible illnesses in danger.

Read the full article here:  3 Reasons Why An Invisible Illness Is More Dangerous

Not to compare illness, because all illness sucks, but sometimes it appears we are at a disadvantage on many levels, especially considering how many of us there are.

“And many invisible illnesses thwart our efforts to advocate for better because our energies are sapped by our daily existence. We are struggling just to function, never mind march with megaphones.”

Awareness is the key to solving each of those three issues. Sharing your story with others and fighting back against the preconceived notions with informative facts, will help us move forward. We may not be marching with megaphones, but every time we speak up or share our truth, we are widening our platform and making progress, one person at a time.

Stay strong! ❤

xoxo

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8 thoughts on “Article: 3 Reasons Why An Invisible Illness Is More Dangerous

  1. Rene, I have PTSD that expresses itself in extreme chronic pain. If the pain subsides panic or depression take over. I am receiving treatment and have been helped so much but it is hard for other to understand that the pain is so bad I can hardly walk while I look so normal. Rather than describe PTSD it is easier to say I have fibromyalgia. I am going to do a post about it before long.

    Liked by 1 person

  2. I agree Rene, esp. cos it is not just one symptom or one illness – you can have FM along with migraines, back issues and other serious conditions that makes one depressed. How do you express it without being mistaken for something else? My earlier rheumy actually made an offhanded comment about me as being suicidal when I was trying to explain the side effects of a bad medicine and hoping that she would take me off it. And when she didn’t, I not only stopped seeing her but also stopped the medicine and suffered (and still do) with its withdrawal effects

    https://lgvblogs.wordpress.com/2015/02/17/blindsided/

    Liked by 1 person

    1. Wow, what a terrible ordeal and sadly, not an uncommon one! My rheumy tried to put me on it as well, I said “no thanks” as I had been on effexor (also a SNRI) once before and the withdrawals were insane. I’m so glad you stopped seeing her and sorry that you are still feeling the withdrawal effects 😦

      I would add another danger…our turning away from the medical community as a whole because of this mistreatment we receive from them. We don’t want to go even when we should some times. *hugs*

      Liked by 2 people

  3. Good points, here. There is a resistance to offering help and compassion to the “invisible illnesses.” When I first started to experience the symptoms of muscular dystrophy (before diagnosis), some friends were irritated that I could not walk as quickly as they could. In fact, one friend (who is no longer a friend) was downright cruel to me. God bless you. Hugs.

    Liked by 1 person

  4. Reblogged this on livingyournewlifewithchronicpain and commented:
    Hello Peers
    I had emergency gall bladder surgery four weeks ago. That really sapped my strength and I turned my energy towards a healthy and positive recovery. It was a powerful observation of how easily anyone’s life can be affected by medical trauma! I am using this experience as a gift. Life can end at any moment. I chose to keep pushing forward, perhaps at a slower pace than those without chronic pain, creating a blog for those looking for companionship, answers, and living life with as much wellness as they can.
    I haven’t had a working computer for two months now. I will have a new one very soon and will begin blogging daily ( as I did before) and complete my “Path to Understanding Pain, While Living With Hope” education, advocacy, and personal planning online, but personal, business. During the lull, I hope you find this post from a fellow invisable illness Peer enlightening.
    Lucinda

    Liked by 1 person

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